GITNUX MARKETDATA REPORT 2024

Sickle Cell Disease Industry Statistics

The global sickle cell disease market is expected to grow at a steady pace due to increasing awareness, improved diagnosis, and ongoing research for new treatments.

Highlights: Sickle Cell Disease Industry Statistics

  • Approximately 100,000 Americans are affected by Sickle Cell Disease.
  • Sickle Cell Disease occurs among about 1 out of every 365 Black or African-American births.
  • About 1 in 13 Black or African-American babies is born with sickle cell trait.
  • 1-3% of African Americans carry sickle cell trait.
  • The Sickle Cell Disease treatment market was valued at $2.6 billion in 2018.
  • The global Sickle Cell Disease treatment market size is expected to grow at a CAGR of 14.4% during 2019-2025.
  • Costs for hospital stays due to Sickle Cell Disease in the U.S. were estimated around $488 million in 2004.
  • The median age of death for sickle cell disease patients is 42 for males and 48 for females.
  • There are about 300,000 infants born every year worldwide with Sickle Cell Disease.
  • Sickle-cell disease results in an average life expectancy reduction of approximately 25–30 years.
  • Only 16% of African countries that routinely screen newborns have sickle cell disease services.
  • The global Sickle Cell Disease therapy market is projected to reach $4.07 billion by 2023.
  • Patients with sickle cell disease crises are hospitalized an average of 1.5 times per year.
  • In the United States, Sickle Cell Disease costs approximately $1.1 billion annually in medical costs for children.
  • The U.S. allocates approximately $1,000 per sickle cell patient per year for research, compared with tens of thousands for other diseases.
  • Approximately 10-15% of adults with Sickle cell disease in the USA have leg ulcers.
  • In sub-Saharan Africa, between 50–90% children with Sickle Cell Disease die before the age of 5.
  • The global prevalence of sickle cell disease at birth is estimated to be between 300,000-400,000 individuals, with a mortality rate of up to 90% in untreated patients.
  • In the Middle East and North Africa, outpatient costs per year for sickle cell disease patients range from $6,839 to $9,111.

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The Latest Sickle Cell Disease Industry Statistics Explained

Approximately 100,000 Americans are affected by Sickle Cell Disease.

The statistic “approximately 100,000 Americans are affected by Sickle Cell Disease” indicates the estimated number of individuals in the United States who suffer from this genetic disorder. Sickle Cell Disease is a hereditary condition that affects red blood cells, causing them to adopt a sickle (crescent) shape, which can hinder the cells’ ability to carry oxygen efficiently. The disease is more prevalent among certain populations, particularly those of African, Mediterranean, Middle Eastern, and South Asian descent. The statistic serves to highlight the significant impact of Sickle Cell Disease on a substantial number of individuals in the U.S., underscoring the importance of awareness, research, and healthcare interventions for those affected by this condition.

Sickle Cell Disease occurs among about 1 out of every 365 Black or African-American births.

The statistic that Sickle Cell Disease occurs among about 1 out of every 365 Black or African-American births indicates the prevalence of this genetic disorder within this specific demographic group. Sickle Cell Disease is an inherited blood disorder that primarily affects individuals of African descent. The statistic suggests that in the Black or African-American population, there is a relatively high likelihood of a newborn being affected by Sickle Cell Disease, with approximately 1 in every 365 births resulting in a child with the disorder. This emphasizes the importance of genetic screening and counseling for individuals within this community to identify carriers and provide appropriate management and support to reduce the impact of Sickle Cell Disease on affected individuals and their families.

About 1 in 13 Black or African-American babies is born with sickle cell trait.

This statistic indicates that approximately 1 in 13 Black or African-American babies is born with sickle cell trait, a genetic condition where an individual inherits one abnormal hemoglobin gene from one parent and one normal gene from the other parent. Sickle cell trait carriers are typically asymptomatic but can pass the trait on to their children. Sickle cell disease, a more severe condition where an individual inherits two abnormal hemoglobin genes, can result in serious health complications. This statistic highlights the higher prevalence of sickle cell trait within the Black or African-American community, emphasizing the importance of awareness, genetic counseling, and early detection to prevent the transmission of the trait and ultimately reduce the incidence of sickle cell disease.

1-3% of African Americans carry sickle cell trait.

The statistic stating that 1-3% of African Americans carry the sickle cell trait refers to the proportion of individuals within the African American population who have inherited one copy of the gene that causes sickle cell disease. Carrying the sickle cell trait means that a person is a carrier of the genetic mutation responsible for sickle cell anemia but does not exhibit symptoms of the disease. This statistic highlights the relatively high prevalence of the sickle cell trait within the African American community compared to other racial or ethnic groups. Understanding the frequency of the sickle cell trait is important for public health efforts, genetic counseling, and healthcare providers in providing appropriate care and support to individuals at risk of passing on the gene to their offspring.

The Sickle Cell Disease treatment market was valued at $2.6 billion in 2018.

The statistic implies that the Sickle Cell Disease treatment market had a total worth of $2.6 billion in the year 2018. This valuation encompasses the various products, services, and therapies aimed at diagnosing, managing, and treating Sickle Cell Disease. The market value suggests the economic importance and scale of this sector, indicating significant investments, research, and advancements in the field of Sickle Cell Disease treatment during that year. This figure provides insight into the market’s size, growth potential, and the demand for effective treatments for individuals affected by Sickle Cell Disease.

The global Sickle Cell Disease treatment market size is expected to grow at a CAGR of 14.4% during 2019-2025.

The statistic states that the global Sickle Cell Disease treatment market is projected to expand at a Compound Annual Growth Rate (CAGR) of 14.4% over the period from 2019 to 2025. This indicates the anticipated average annual growth rate of the market during these years. A CAGR provides a smoother measure of growth compared to simple annual growth rates, giving a more accurate representation of the market’s overall performance over the specified period. The significant growth rate suggests a rising demand for Sickle Cell Disease treatment products and services, likely driven by factors such as increasing awareness, technological advancements, and improved access to healthcare services for patients with the condition.

Costs for hospital stays due to Sickle Cell Disease in the U.S. were estimated around $488 million in 2004.

The statistic indicates that the total costs associated with hospital stays attributed to Sickle Cell Disease (SCD) in the United States reached approximately $488 million in the year 2004. This monetary figure provides insight into the economic burden of SCD on the healthcare system during that time period. Costs for hospital stays can encompass a wide range of expenses, such as inpatient care, medication, diagnostic tests, and other healthcare services required by individuals with SCD. Understanding the financial impact of SCD-related hospitalizations is crucial for policymakers, healthcare providers, and researchers in order to allocate resources effectively, improve patient outcomes, and develop strategies to mitigate the economic challenges faced by individuals and families affected by this chronic and complex disease.

The median age of death for sickle cell disease patients is 42 for males and 48 for females.

The median age of death for sickle cell disease patients is a measure that characterizes the midpoint of the age distribution at which half of the patients have died. Specifically, among males with sickle cell disease, the median age of death is 42 years, indicating that 50% of males with this condition will die before reaching this age, while the other 50% will live longer. For females with sickle cell disease, the median age of death is 48 years, suggesting that female patients tend to live slightly longer on average before succumbing to the disease. These median age values provide valuable insights into the life expectancy of sickle cell disease patients and can help inform healthcare providers and patients about the typical age at which mortality occurs in this population.

There are about 300,000 infants born every year worldwide with Sickle Cell Disease.

The statistic that there are about 300,000 infants born every year worldwide with Sickle Cell Disease underscores the significant global burden of this inherited blood disorder. Sickle Cell Disease is characterized by abnormal hemoglobin production, leading to red blood cells taking on a sickle shape that hinders their ability to effectively carry oxygen throughout the body. This statistic highlights the substantial number of individuals, particularly in regions where the genetic mutation is more prevalent, who are affected by this potentially life-threatening condition from birth. The high incidence of Sickle Cell Disease serves as a reminder of the importance of genetic screening, early diagnosis, and comprehensive care to manage and improve outcomes for individuals living with this debilitating disease.

Sickle-cell disease results in an average life expectancy reduction of approximately 25–30 years.

The statistic that sickle-cell disease results in an average life expectancy reduction of approximately 25-30 years indicates that individuals with sickle-cell disease, a genetic disorder affecting the shape of red blood cells, are expected to live significantly shorter lives compared to those without the disease. This reduction in life expectancy highlights the severity of the impact of sickle-cell disease on individuals’ health and overall well-being. Factors contributing to the reduced life expectancy may include complications such as organ damage, increased risk of infections, and potential cardiovascular issues associated with the disease. The statistic underscores the importance of early detection, proper management, and ongoing medical care for individuals with sickle-cell disease in order to mitigate the negative impact on their life expectancy.

Only 16% of African countries that routinely screen newborns have sickle cell disease services.

This statistic indicates that a relatively small proportion, specifically 16%, of African countries that regularly conduct newborn screening programs also offer services specifically tailored for sickle cell disease. Sickle cell disease is a genetic condition that predominantly affects individuals of African descent, underscoring the importance of access to specialized services and care for affected individuals. The low percentage of countries providing such services highlights potential gaps in healthcare infrastructure and resources across the continent, suggesting a need for improved prioritization of sickle cell disease management and increased support for affected populations in African countries.

The global Sickle Cell Disease therapy market is projected to reach $4.07 billion by 2023.

The statistic “The global Sickle Cell Disease therapy market is projected to reach $4.07 billion by 2023” indicates that the market for therapies targeting Sickle Cell Disease (SCD) is expected to grow significantly in the coming years. This projection suggests a high demand for treatment options for SCD, a genetic blood disorder that affects hemoglobin and leads to various health complications. The substantial market value reflects the increasing awareness and focus on improving therapies and outcomes for individuals with SCD worldwide. The growth in the market size also signals opportunities for healthcare companies, researchers, and investors to further develop innovative treatments and interventions for this chronic condition.

Patients with sickle cell disease crises are hospitalized an average of 1.5 times per year.

This statistic indicates that, on average, patients with sickle cell disease experience crises that require hospitalization 1.5 times per year. Sickle cell disease is a genetic blood disorder that can lead to various health complications such as pain crises, infections, and organ damage. Hospitalizations are often necessary to manage these crises and provide appropriate medical care. The average of 1.5 hospitalizations per year suggests that patients with sickle cell disease may have recurrent or ongoing health issues that require frequent medical attention. This statistic highlights the burden of the disease on patients and the healthcare system, emphasizing the need for effective management strategies and support for individuals living with sickle cell disease.

In the United States, Sickle Cell Disease costs approximately $1.1 billion annually in medical costs for children.

The statistic that Sickle Cell Disease costs approximately $1.1 billion annually in medical costs for children in the United States indicates the significant financial burden that this genetic disorder places on the healthcare system. Sickle Cell Disease is a chronic condition that affects primarily African American and Hispanic populations and can lead to complications such as pain crises, infections, and organ damage. The high costs associated with treating children with Sickle Cell Disease encompass various medical expenses, including hospitalizations, medications, and specialized care. This statistic underscores the importance of further research, education, and support services to improve outcomes and reduce healthcare costs for individuals and families affected by Sickle Cell Disease.

The U.S. allocates approximately $1,000 per sickle cell patient per year for research, compared with tens of thousands for other diseases.

This statistic highlights a significant disparity in funding allocation for sickle cell disease research compared to other diseases in the U.S. Specifically, it points out that the U.S. government allocates only around $1,000 per sickle cell patient per year for research purposes, which pales in comparison to the funding levels for many other diseases that receive tens of thousands of dollars per patient annually. This funding discrepancy raises concerns about the prioritization of research efforts and resources, particularly for a genetic disorder like sickle cell disease that disproportionately affects certain populations and has a substantial impact on individuals’ health and quality of life. Addressing this disparity is crucial to advancing scientific understanding, developing effective treatments, and ultimately improving outcomes for individuals living with sickle cell disease.

Approximately 10-15% of adults with Sickle cell disease in the USA have leg ulcers.

The statistic “Approximately 10-15% of adults with Sickle cell disease in the USA have leg ulcers” indicates the prevalence of a common complication associated with sickle cell disease among the adult population in the United States. Leg ulcers are painful and chronic sores that can develop due to impaired blood flow and tissue damage caused by the sickle-shaped red blood cells characteristic of the disease. The estimated range of 10-15% suggests that a significant proportion of adults with sickle cell disease experience this complication, highlighting the need for effective management strategies to prevent and treat leg ulcers in this population to improve their quality of life and overall health outcomes.

In sub-Saharan Africa, between 50–90% children with Sickle Cell Disease die before the age of 5.

The statistic that between 50-90% of children with Sickle Cell Disease in sub-Saharan Africa die before the age of 5 highlights the significant impact of this genetic disorder on childhood mortality in the region. Sickle Cell Disease is a serious inherited blood disorder that causes red blood cells to become misshapen and disrupt normal blood flow in the body, leading to severe complications such as organ damage, stroke, and infections. The high mortality rate among young children with the disease reflects the challenges in providing adequate healthcare, including access to diagnostic tools, preventative measures, and treatment options in many parts of sub-Saharan Africa. This statistic underscores the urgent need for improved healthcare infrastructure, awareness, and support systems to better address the burden of Sickle Cell Disease and reduce childhood mortality rates in the region.

The global prevalence of sickle cell disease at birth is estimated to be between 300,000-400,000 individuals, with a mortality rate of up to 90% in untreated patients.

The statistic highlights the global prevalence of sickle cell disease, indicating that between 300,000 to 400,000 individuals are estimated to be born with the condition. This genetic disorder causes red blood cells to assume a “sickle” shape, leading to various health complications. The statistic also mentions a staggering mortality rate of up to 90% in untreated patients, emphasizing the severity of the disease. Early detection, proper management, and access to medical interventions are crucial in improving outcomes and reducing mortality rates among individuals affected by sickle cell disease.

In the Middle East and North Africa, outpatient costs per year for sickle cell disease patients range from $6,839 to $9,111.

The statistic indicates that in the Middle East and North Africa region, the annual outpatient costs for individuals with sickle cell disease can vary between $6,839 and $9,111. This range reflects the financial burden faced by patients seeking outpatient care for the management and treatment of sickle cell disease in the region. Factors such as the availability and cost of healthcare services, medications, diagnostic tests, and follow-up appointments contribute to the variability in outpatient costs. Understanding these cost ranges is essential for policymakers, healthcare providers, and patients to address affordability issues, ensure access to quality care, and develop effective strategies for managing sickle cell disease in the Middle East and North Africa.

References

0. – https://www.www.hematology.org

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2. – https://www.www.who.int

3. – https://www.jamanetwork.com

4. – https://www.www.alliedmarketresearch.com

5. – https://www.www.cdc.gov

6. – https://www.ashpublications.org

7. – https://www.www.afro.who.int

8. – https://www.www.statnews.com

9. – https://www.www.ncbi.nlm.nih.gov

How we write our statistic reports:

We have not conducted any studies ourselves. Our article provides a summary of all the statistics and studies available at the time of writing. We are solely presenting a summary, not expressing our own opinion. We have collected all statistics within our internal database. In some cases, we use Artificial Intelligence for formulating the statistics. The articles are updated regularly.

See our Editorial Process.

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